Posted on March 29, 2010. Filed under: Awareness, Ehlers-danlos syndrome, Related Disorders, Symptoms of Ehlers-Danlos syndrome, Treatment | Tags: EDS, Ehlers-danlos syndrome, John Ritter, Loeys-Dietz Syndrome, Marfan Syndrome, Rare Diseases, Research, VEDS |
Named for actor John Ritter, who died from an aortic dissection, the Ritter Rules offer practical guidelines for patients to equip themselves with and increase their chances of accurate diagnosis and treatment. There are many diseases and risk factors at work, just one of which is Vascular Ehlers-Danlos Syndrome, but other genetic syndromes and lifestyle issues also put people at risk.
Take a few minutes to go over these; share them with friends and family. So many of these deaths are preventable but without the right information, survival is a lot less likely.
My husband died from an abdominal aortic aneurysm but also suffered other arterial dissections and complications that weren’t diagnosed early because his symptoms were misread. Inform yourself and the people you love so that you’ll never find yourself in that awful situation.Read Full Post | Make a Comment ( 1 so far )