Posted by Debbie Vaughan on July 1, 2010 · 3 Comments
Update – 2/4/2011: The information contained in this article is published with the permission of EDS Network C.A.R.E.S., for whom this letter was originally written by Dr. Dietz. It’s through the relentless pursuit and dedication of this group that this project is happening at all. They are a fabulous group of patients, families, and friends … Read more
Filed under Awareness, Ehlers-danlos syndrome, Related Disorders, Research Information, Treatment · Tagged with aneurysm, arterial complication, arterial rupture, EDS Research, EDS Type IV, Ehlers-danlos syndrome, Marfan Syndrome, Vascular Ehlers-Danlos syndrome, VEDS
Posted by Debbie Vaughan on March 29, 2010 · 1 Comment
Named for actor John Ritter, who died from an aortic dissection, the Ritter Rules offer practical guidelines for patients to equip themselves with and increase their chances of accurate diagnosis and treatment. There are many diseases and risk factors at work, just one of which is Vascular Ehlers-Danlos Syndrome, but other genetic syndromes and lifestyle … Read more
Filed under Awareness, Ehlers-danlos syndrome, Related Disorders, Symptoms of Ehlers-Danlos syndrome, Treatment · Tagged with EDS, Ehlers-danlos syndrome, John Ritter, Loeys-Dietz Syndrome, Marfan Syndrome, Rare Diseases, Research, VEDS
