Desperate Measures
Posted by Debbie Vaughan on January 26, 2010 · 2 Comments
It’s strange what being the parent of a child with a rare, life-threatening or debilitating genetic disorder can do to a person. There’s even a movie out right now about it – “Extraordinary Measures”, with Harrison Ford and that other guy from the “George of the Jungle” movie my kids still like to watch. You’ve probably … Read more
Filed under Awareness, Related Disorders, Research Information · Tagged with cure, Fears, Gripes, Rare Diseases, Research, Support & Friendship, VEDS
