First Results from EDS Survey
In early 2010, I created an online survey for patients (or their family members) to complete. The idea was to gather some basic information on ourselves as a community because the better informed we are, the more capable we are to advocate for ourselves and our loved ones. So far, more than 220 surveys have … Read more
The Other Side of the Nightmare
Twelve months ago I was forced to face an idea that terrified me. Our local orthopaedic surgeon who was treating my son for the ACL tear in his right knee was telling me – in front of my son no less – that surgery was the only way to stop the worsening damage, keep my … Read more
Cardboard Walls
A friend of mine told me once about an experience she had soon after she lost her husband. She was at the family’s home, the day of the funeral, and was mindlessly shaking hands, nodding at people’s condolences, and smiling as best she could. An older woman who my friend knew only remotely took her … Read more
